TY - JOUR
T1 - Solution to support informal caregivers of patients with dementia
AU - Lobão, Maria João
AU - Guan, Yan
AU - Curado, Jose
AU - Goncalves, Mariana
AU - Melo, Rita
AU - Silva, Carla
AU - Velosa, Teresa
AU - Cardoso, Susana
AU - Santos, Vitor
AU - Santos, Carolina
N1 - Publisher Copyright:
© 2021 The Authors. Published by Elsevier B.V.
Copyright:
Copyright 2021 Elsevier B.V., All rights reserved.
PY - 2021
Y1 - 2021
N2 - The dementia is a degenerative uncurable disease. Giving its high prevalence worldwide, it is considered a major global public health concern. Patients with dementia need long-term care and support at home. Current evidence demonstrates that their informal caregivers are prone to psychiatric and cardiovascular diseases and lack formal support that can help them in their exhausting daily routine. We intend to report the creation of an ICT solution to support informal caregivers of patients with dementia, addressing identified needs. The academic engineering project launched was divided in two phases: 1) requirements analysis and software design and 2) software development and deployment. The user-friendly and smooth functioning application developed, called OneCare, has a set of functionalities that allows the free access to information about the disease, useful resources, medication, outpatient consultation management and communication with peers. We consider that this application may improve effectiveness in care provided by informal caregivers of patients with dementia, while having a positive impact in their health outcomes and quality of life. We advocate that future policies in this area should consider the use of this kind of technology as a way to reduce disease burden, institutionalization needs and increase the chances of living well at home.
AB - The dementia is a degenerative uncurable disease. Giving its high prevalence worldwide, it is considered a major global public health concern. Patients with dementia need long-term care and support at home. Current evidence demonstrates that their informal caregivers are prone to psychiatric and cardiovascular diseases and lack formal support that can help them in their exhausting daily routine. We intend to report the creation of an ICT solution to support informal caregivers of patients with dementia, addressing identified needs. The academic engineering project launched was divided in two phases: 1) requirements analysis and software design and 2) software development and deployment. The user-friendly and smooth functioning application developed, called OneCare, has a set of functionalities that allows the free access to information about the disease, useful resources, medication, outpatient consultation management and communication with peers. We consider that this application may improve effectiveness in care provided by informal caregivers of patients with dementia, while having a positive impact in their health outcomes and quality of life. We advocate that future policies in this area should consider the use of this kind of technology as a way to reduce disease burden, institutionalization needs and increase the chances of living well at home.
UR - http://www.scopus.com/inward/record.url?scp=85105678238&partnerID=8YFLogxK
UR - https://www.webofscience.com/wos/woscc/full-record/WOS:000655346400036
U2 - 10.1016/j.procs.2021.01.149
DO - 10.1016/j.procs.2021.01.149
M3 - Conference article
AN - SCOPUS:85105678238
SN - 1877-0509
VL - 181
SP - 294
EP - 301
JO - Procedia Computer Science
JF - Procedia Computer Science
T2 - 2020 International Conference on ENTERprise Information Systems - International Conference on Project MANagement and International Conference on Health and Social Care Information Systems and Technologies, CENTERIS/ProjMAN/HCist 2020
Y2 - 21 October 2020 through 23 October 2020
ER -