Pasma 20-30 – painel online de doentes para monitorização do controlo da asma 2020-2030: Um estudo de coorte dinâmico prospetivo

Translated title of the contribution: Pasma 20-30 – online panel of patients for the surveillance of asthma control 2020-2030: A prospective dynamic cohort study

Ana Sá-Sousa, Ana M. Pereira, João G. Marques, Nuno Neuparth, João A. Fonseca, Cristina Jácome

Research output: Contribution to journalArticlepeer-review

Abstract

Background: Since the last Portuguese National Asthma Survey (2010), important developments on the knowledge of asthma, its classification, and therapeutic options have occurred. Also, the evolution of information and communication technologies promotes the use of new data collection methodologies and the existence of digital tools simplifies longitudinal data collection, namely by the establishment of an online panel of participants. Objectives: The main objective of this project is the establishment of a national panel of patients with asthma for the surveillance of variations on disease control in the next 10 years (2020-2030). With that purpose, we aim to develop and implement an online platform for the collection of data related to asthma in Portugal and to carry out an initial study to estimate the variation, between 2010 and 2021, of the proportion of patients with uncontrolled asthma in Portugal. Methods: This is an ongoing observational study based on the establishment of an open cohort of patients with asthma, using an online platform that will include an initial questionnaire and, in a second step, complementary questions for further characterization. The study population consists of adolescents (>14 years old) and adults with current asthma (previous diagnosis of asthma, or two or more positive answers to validated screening questionnaire, or who are currently taking asthma medication), living in Portugal. Asthma control will be based on the Control of Allergic Rhinitis and Asthma Test (CARAT) and defined by a total score > 24 or the lower airways score ≥ 16. Expected results: With this project, an open cohort of patients with asthma will be obtained through an online questionnaire. Also, the implementation of an online platform for an ongoing collection of data on asthma will gather up-to-date and robust information based on ‘real world’ data, collected using an easy-to-use, high-reach methodology. The data obtained in the initial study will improve the knowledge of the determinants of disease management and its impact on the use of health resources. Conclusion: The estab-lishment of an online panel of patients with asthma that, together with an online tool to support observational studies have the poten-tial to generate knowledge on the evolution of asthma management at the national level. This project will therefore contribute to inform health policies and improve the clinical outcomes of patients with asthma in Portugal.

Translated title of the contributionPasma 20-30 – online panel of patients for the surveillance of asthma control 2020-2030: A prospective dynamic cohort study
Original languagePortuguese
Pages (from-to)263-272
Number of pages10
JournalRevista Portuguesa de Imunoalergologia
Volume29
Issue number4
DOIs
Publication statusPublished - 2021

Keywords

  • Asthma
  • Disease management
  • Longitudinal study

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