TY - JOUR
T1 - Normalising participatory health research approaches in the WHO European region for refugee and migrant health
T2 - a paradigm shift
AU - MacFarlane, Anne
AU - Huschke, Susann
AU - Marques, Maria J.
AU - Gama, Ana
AU - Kinaan, Walaa
AU - Hassan, Ahmed
AU - Papyan, Anna
AU - Phelan, Helen
AU - Severoni, Santino
AU - Kumar, Bernadette
AU - Dias, Sonia
N1 - Funding Information:
In addition to academic and health service colleagues involved in case studies 1, 2 and 3, we wish to acknowledge the following organisations and (with permission) the following individuals: Community organisation that collaborated in case study 1- Doras, Limerick, Ireland; Funder case study 1= Irish Research Council, New Foundations Award; Quote case study 1- Ewa Zak-Dyndal; Community organisations that collaborated in case study 2\u2013Intercultural Diversity Education Centre, Ireland and Shannon Family Resource Centre; Funder case study 2\u2013Health Research Board, Dublin, Ireland (HRA-PHR-2015-1344); Quote case study 2\u2013Colette Bradley; Community organizations that collaborated in case study 3\u2013AD SUMUS\u2013Associa\u00E7\u00E3o de Imigrantes de Almada; AJPAS\u2013Associa\u00E7\u00E3o de Interven\u00E7\u00E3o Comunit\u00E1ria; Alto Comissariado para as Migra\u00E7\u00F5es; ALCC\u2013Associa\u00E7\u00E3o Lusofonia Cultura e Cidadania; Associa\u00E7\u00E3o Casa-da-\u00CDndia; Associa\u00E7\u00E3o de Imigrantes Mundo Feliz; Associa\u00E7\u00E3o Isl\u00E2mica da Tapada das Merc\u00EAs e Mem Martins; Associa\u00E7\u00E3o Lusofonia Cultura e Cidadania; Associa\u00E7\u00E3o Unidos de Cabo Verde; Casa do Brasil; Centro Porta Amiga de Almada\u2013AMI; Cruz Vermelha Portuguesa\u2013Delega\u00E7\u00E3o de Braga; InPulsar- Associa\u00E7\u00E3o para o Desenvolvimento Comunit\u00E1rio; NIALP\u2013Intercultural Association Lisboa; Prosaudesc\u2013Associa\u00E7\u00E3o de Promotores de Sa\u00FAde Ambiente e Desenvolvimento S\u00F3cio Cultural; Solidariedade Imigrante\u2013Associa\u00E7\u00E3o para a Defesa dos Direitos dos Imigrantes; UAI\u2013Associa\u00E7\u00E3o Cultural Luso-brasileira de Apoio \u00E0 Integra\u00E7\u00E3o em Portugal; Funder case study 3 Fundo para o Asilo, Migra\u00E7\u00E3o e Integra\u00E7\u00E3o (Ref.PT/2021/FAMI/693). AG is supported by FCT - Funda\u00E7\u00E3o para a Ci\u00EAncia e Tecnologia, I.P. (Reference CEECINST/00042/2021/CP1773/CT0001 and DOI identifier 10.54499/CEECINST/00042/2021/CP1773/CT0001).
Publisher Copyright:
© 2024
PY - 2024/6
Y1 - 2024/6
N2 - While people's involvement in health research is increasingly the encouraged norm in many countries, the involvement of refugees and migrants in research about their health is rare. Here, we call for a paradigm shift in the field of refugee and migrant health to make participatory health research routine, i.e. normalised. To disrupt ‘business as usual’, we synthesise evidence about meaningful research partnerships and features of inclusive participatory spaces. We present examples of decolonial, culturally attuned methods that can be used to reimagine and reinvigorate research practice because they encourage critical reflexivity and power-sharing: arts-based research using music and singing, participatory learning and action research, Photovoice and co-design (ideas generation) workshops. We consider the consequences of not making this paradigm shift. We conclude with recommendations for specific structural and policy changes and empirical research questions that are needed to inform the normalisation of participatory health research in this field.
AB - While people's involvement in health research is increasingly the encouraged norm in many countries, the involvement of refugees and migrants in research about their health is rare. Here, we call for a paradigm shift in the field of refugee and migrant health to make participatory health research routine, i.e. normalised. To disrupt ‘business as usual’, we synthesise evidence about meaningful research partnerships and features of inclusive participatory spaces. We present examples of decolonial, culturally attuned methods that can be used to reimagine and reinvigorate research practice because they encourage critical reflexivity and power-sharing: arts-based research using music and singing, participatory learning and action research, Photovoice and co-design (ideas generation) workshops. We consider the consequences of not making this paradigm shift. We conclude with recommendations for specific structural and policy changes and empirical research questions that are needed to inform the normalisation of participatory health research in this field.
KW - Community participation
KW - Health equity
KW - Migration
KW - Participatory health research
KW - Public health
UR - http://www.scopus.com/inward/record.url?scp=85195638986&partnerID=8YFLogxK
U2 - 10.1016/j.lanepe.2024.100837
DO - 10.1016/j.lanepe.2024.100837
M3 - Review article
AN - SCOPUS:85195638986
SN - 2666-7762
VL - 41
JO - The Lancet Regional Health - Europe
JF - The Lancet Regional Health - Europe
M1 - 100837
ER -