How Is the Administrator’s Experience in Managing Health Facebook Groups? The Impact of Social Media in Patients With IB

Cláudia Pernencar, Inga Saboia

Research output: Chapter in Book/Report/Conference proceedingChapter

Abstract

In the current decade, patients with chronic conditions take advantage of technological resources to share experiences, look for help and get together in groups. Social media has become a productive spot of health information for users. This Chapter aims to clarify the administrators’ user experience of social media health groups within the context of the Inflammatory Bowel Disease (IBD). Semi-structured interviews with seven Portuguese and Brazilian managers of Facebook groups were carried out. The authors propose a model of participation in online communities that take into account the variables of Presence–Interconnection between users in daily lives; Relationship–Aspects of experience where users meet; Reputation–Positioning of users related to the status; Groups–Relationship issues between members; Conversations – Extension of the user interaction; Sharing–Represents the exchange, distribution and reception and Education–The information transmitted. Findings reinforced that administrators’ groups use social media to lead patients´ empowerment.
Original languageEnglish
Title of host publicationCommunicating Rare Diseases and Disorders in the Digital Age
EditorsLiliana Costa, Sónia Oliveira
Place of PublicationPensilvânia, EUA
PublisherIGI Global
Chapter11
Pages315-341
Number of pages27
ISBN (Electronic)9781799820895
ISBN (Print)9781799820888
Publication statusPublished - 2020

Fingerprint Dive into the research topics of 'How Is the Administrator’s Experience in Managing Health Facebook Groups? The Impact of Social Media in Patients With IB'. Together they form a unique fingerprint.

Cite this