EpiReumaPt- the study of rheumatic and musculoskeletal diseases in Portugal

a detailed view of the methodology

Ana M Rodrigues, Nélia Gouveia, Leonor Pereira Da Costa, Mónica Eusébio, Sofia Ramiro, Pedro Machado, Ana Filipa Mourão, Inês Silva, Pedro Laires, Alexandre Sepriano, Filipe Araújo, Pedro Simões Coelho, Sónia P. Gonçalves, Ana Zhao, João Eurico Fonseca, J M Caldas de Almeida, Viviana Tavares, José António Pereira da Silva, Henrique Barros, Jorge Cerol & 4 others Jorge Mendes, Loreto Carmona, Helena Canhão, Jaime C Branco

Research output: Contribution to journalEditorial

19 Citations (Scopus)
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Abstract

Rheumatic and musculoskeletal diseases (RMD) are prevalent and leading causes of disability and consumption of healthcare and social resources. EpiReumaPt is a national population-based survey developed by the Portuguese Society of Rheumatology that aimed to estimate the prevalence of RMDs and determine their impact on function, quality of life, mental health and use of healthcare resources. This article describes in detail the design, methodology and planned analyses of EpiReumaPt. Recruitment started in September 2011 and finished in December 2013. This study involved a three-stage approach. The first step was a face-to-face survey performed by trained interviewers at the household of 10,661 subjects who where randomly selected by a stratified multistage sampling. A highly sensitive screening questionnaire for RMDs was used. Secondly, participants who screened positive (64%) for at least one RMD as well as 20% of individuals with a negative screening were invited for assessment by a rheumatologist. In total, 3,877 subjects participated in this second phase, where they were also invited to donate a blood sample to be stored at the Biobanco-IMM. History and physical examination, followed by appropriate laboratory and imaging tests were performed. At the end of the visit, the rheumatologist established a diagnosis. Finally, a team of three experienced rheumatologists reviewed all the clinical data and defined the diagnoses according to previously validated criteria. The EpiReumaPt dataset, containing data from several questionnaires, various clinical measurements and information from laboratory and imaging tests, comprises an invaluable asset for research. The large amount of information collected from each participant and the large number of participants, with a wide age range covering and being representative of the adults from the entire country, makes EpiReumaPt the largest study of RMDs performed in Portugal.

Original languageEnglish
Pages (from-to)110-24
Number of pages15
JournalActa reumatologica portuguesa
Volume40
Issue number2
Publication statusPublished - Apr 2015

Fingerprint

Musculoskeletal Diseases
Portugal
Rheumatic Diseases
Delivery of Health Care
Rheumatology
Physical Examination
Mental Health
History
Quality of Life
Interviews
Surveys and Questionnaires
Research
Population
Rheumatologists

Keywords

  • EpiReumaPt
  • Epidemiology
  • Rheumatic diseases
  • Methodology
  • Study design

Cite this

Rodrigues, Ana M ; Gouveia, Nélia ; Da Costa, Leonor Pereira ; Eusébio, Mónica ; Ramiro, Sofia ; Machado, Pedro ; Mourão, Ana Filipa ; Silva, Inês ; Laires, Pedro ; Sepriano, Alexandre ; Araújo, Filipe ; Coelho, Pedro Simões ; Gonçalves, Sónia P. ; Zhao, Ana ; Fonseca, João Eurico ; de Almeida, J M Caldas ; Tavares, Viviana ; da Silva, José António Pereira ; Barros, Henrique ; Cerol, Jorge ; Mendes, Jorge ; Carmona, Loreto ; Canhão, Helena ; Branco, Jaime C. / EpiReumaPt- the study of rheumatic and musculoskeletal diseases in Portugal : a detailed view of the methodology. In: Acta reumatologica portuguesa. 2015 ; Vol. 40, No. 2. pp. 110-24.
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Rodrigues, AM, Gouveia, N, Da Costa, LP, Eusébio, M, Ramiro, S, Machado, P, Mourão, AF, Silva, I, Laires, P, Sepriano, A, Araújo, F, Coelho, PS, Gonçalves, SP, Zhao, A, Fonseca, JE, de Almeida, JMC, Tavares, V, da Silva, JAP, Barros, H, Cerol, J, Mendes, J, Carmona, L, Canhão, H & Branco, JC 2015, 'EpiReumaPt- the study of rheumatic and musculoskeletal diseases in Portugal: a detailed view of the methodology', Acta reumatologica portuguesa, vol. 40, no. 2, pp. 110-24.

EpiReumaPt- the study of rheumatic and musculoskeletal diseases in Portugal : a detailed view of the methodology. / Rodrigues, Ana M; Gouveia, Nélia; Da Costa, Leonor Pereira; Eusébio, Mónica; Ramiro, Sofia; Machado, Pedro; Mourão, Ana Filipa; Silva, Inês; Laires, Pedro; Sepriano, Alexandre; Araújo, Filipe; Coelho, Pedro Simões; Gonçalves, Sónia P.; Zhao, Ana; Fonseca, João Eurico; de Almeida, J M Caldas; Tavares, Viviana; da Silva, José António Pereira; Barros, Henrique; Cerol, Jorge; Mendes, Jorge; Carmona, Loreto; Canhão, Helena; Branco, Jaime C.

In: Acta reumatologica portuguesa, Vol. 40, No. 2, 04.2015, p. 110-24.

Research output: Contribution to journalEditorial

TY - JOUR

T1 - EpiReumaPt- the study of rheumatic and musculoskeletal diseases in Portugal

T2 - a detailed view of the methodology

AU - Rodrigues, Ana M

AU - Gouveia, Nélia

AU - Da Costa, Leonor Pereira

AU - Eusébio, Mónica

AU - Ramiro, Sofia

AU - Machado, Pedro

AU - Mourão, Ana Filipa

AU - Silva, Inês

AU - Laires, Pedro

AU - Sepriano, Alexandre

AU - Araújo, Filipe

AU - Coelho, Pedro Simões

AU - Gonçalves, Sónia P.

AU - Zhao, Ana

AU - Fonseca, João Eurico

AU - de Almeida, J M Caldas

AU - Tavares, Viviana

AU - da Silva, José António Pereira

AU - Barros, Henrique

AU - Cerol, Jorge

AU - Mendes, Jorge

AU - Carmona, Loreto

AU - Canhão, Helena

AU - Branco, Jaime C

PY - 2015/4

Y1 - 2015/4

N2 - Rheumatic and musculoskeletal diseases (RMD) are prevalent and leading causes of disability and consumption of healthcare and social resources. EpiReumaPt is a national population-based survey developed by the Portuguese Society of Rheumatology that aimed to estimate the prevalence of RMDs and determine their impact on function, quality of life, mental health and use of healthcare resources. This article describes in detail the design, methodology and planned analyses of EpiReumaPt. Recruitment started in September 2011 and finished in December 2013. This study involved a three-stage approach. The first step was a face-to-face survey performed by trained interviewers at the household of 10,661 subjects who where randomly selected by a stratified multistage sampling. A highly sensitive screening questionnaire for RMDs was used. Secondly, participants who screened positive (64%) for at least one RMD as well as 20% of individuals with a negative screening were invited for assessment by a rheumatologist. In total, 3,877 subjects participated in this second phase, where they were also invited to donate a blood sample to be stored at the Biobanco-IMM. History and physical examination, followed by appropriate laboratory and imaging tests were performed. At the end of the visit, the rheumatologist established a diagnosis. Finally, a team of three experienced rheumatologists reviewed all the clinical data and defined the diagnoses according to previously validated criteria. The EpiReumaPt dataset, containing data from several questionnaires, various clinical measurements and information from laboratory and imaging tests, comprises an invaluable asset for research. The large amount of information collected from each participant and the large number of participants, with a wide age range covering and being representative of the adults from the entire country, makes EpiReumaPt the largest study of RMDs performed in Portugal.

AB - Rheumatic and musculoskeletal diseases (RMD) are prevalent and leading causes of disability and consumption of healthcare and social resources. EpiReumaPt is a national population-based survey developed by the Portuguese Society of Rheumatology that aimed to estimate the prevalence of RMDs and determine their impact on function, quality of life, mental health and use of healthcare resources. This article describes in detail the design, methodology and planned analyses of EpiReumaPt. Recruitment started in September 2011 and finished in December 2013. This study involved a three-stage approach. The first step was a face-to-face survey performed by trained interviewers at the household of 10,661 subjects who where randomly selected by a stratified multistage sampling. A highly sensitive screening questionnaire for RMDs was used. Secondly, participants who screened positive (64%) for at least one RMD as well as 20% of individuals with a negative screening were invited for assessment by a rheumatologist. In total, 3,877 subjects participated in this second phase, where they were also invited to donate a blood sample to be stored at the Biobanco-IMM. History and physical examination, followed by appropriate laboratory and imaging tests were performed. At the end of the visit, the rheumatologist established a diagnosis. Finally, a team of three experienced rheumatologists reviewed all the clinical data and defined the diagnoses according to previously validated criteria. The EpiReumaPt dataset, containing data from several questionnaires, various clinical measurements and information from laboratory and imaging tests, comprises an invaluable asset for research. The large amount of information collected from each participant and the large number of participants, with a wide age range covering and being representative of the adults from the entire country, makes EpiReumaPt the largest study of RMDs performed in Portugal.

KW - EpiReumaPt

KW - Epidemiology

KW - Rheumatic diseases

KW - Methodology

KW - Study design

M3 - Editorial

VL - 40

SP - 110

EP - 124

JO - Acta reumatologica portuguesa

JF - Acta reumatologica portuguesa

SN - 0303-464X

IS - 2

ER -