Do caregiver profiles predict the use of dementia care services? Findings from the Actifcare study

Liselot Kerpershoek, Bob Woods, Claire Wolfs, Frans Verhey, Hannah Jelley, Anja Bieber, Astrid Stephan, Mona Michelet, Geir Selbaek, Ron Handels, Anders Wimo, Louise Hopper, Kate Irving, Maria J. Marques, Manuel Gonçalves-Pereira, Elisa Portolani, Orazio Zanetti, Marjolein de Vugt

Research output: Contribution to journalArticle

Abstract

Objectives: Previously developed dementia caregiver profiles defined by caregiver age and burden, have been associated with caregiver quality of life, depression and perseverance time. The current aim was to investigate whether these caregiver profiles could predict subsequent service use. In addition, non-personal (e.g. meals on wheels) and supportive services (e.g. Alzheimer café) in early dementia were investigated as predictors. Methods: A total of 451 dyads of people with dementia and their informal caregivers from eight European countries were followed for one year. People were included if they did not use formal (personal) care but were expected to do so within 1 year. Logistic regression analyses were used with four clusters of service use as dependent variables (home social care, home personal care, day care and admission). The independent variables were caregiver profiles, and non-personal and supportive services at baseline. Results: Caregiver profiles were significant predictors of service use; those experiencing high strain were more likely to use formal care. The use of low-intensity, less intrusive services at baseline significantly predicted the use of home personal care and admission at follow-up. The use of day care at follow-up was predicted by the baseline use of supportive services. Conclusion: Caregiver profiles are valuable predictors for service use: this knowledge can aid professionals in ensuring optimal access to services, which is important for maintaining independence at home. In addition, the use of supportive and less intrusive, non-personal services in the early stages of dementia is to be advised.

Original languageEnglish
JournalAging and Mental Health
Early online date6 Dec 2018
DOIs
Publication statusE-pub ahead of print - 6 Dec 2018

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Caregivers
Dementia
Home Care Services
Food Services
Logistic Models
Regression Analysis
Quality of Life
Depression

Keywords

  • caregiver profiles
  • Dementia
  • informal caregiver
  • service use

Cite this

Kerpershoek, Liselot ; Woods, Bob ; Wolfs, Claire ; Verhey, Frans ; Jelley, Hannah ; Bieber, Anja ; Stephan, Astrid ; Michelet, Mona ; Selbaek, Geir ; Handels, Ron ; Wimo, Anders ; Hopper, Louise ; Irving, Kate ; Marques, Maria J. ; Gonçalves-Pereira, Manuel ; Portolani, Elisa ; Zanetti, Orazio ; de Vugt, Marjolein. / Do caregiver profiles predict the use of dementia care services? Findings from the Actifcare study. In: Aging and Mental Health. 2018.
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abstract = "Objectives: Previously developed dementia caregiver profiles defined by caregiver age and burden, have been associated with caregiver quality of life, depression and perseverance time. The current aim was to investigate whether these caregiver profiles could predict subsequent service use. In addition, non-personal (e.g. meals on wheels) and supportive services (e.g. Alzheimer caf{\'e}) in early dementia were investigated as predictors. Methods: A total of 451 dyads of people with dementia and their informal caregivers from eight European countries were followed for one year. People were included if they did not use formal (personal) care but were expected to do so within 1 year. Logistic regression analyses were used with four clusters of service use as dependent variables (home social care, home personal care, day care and admission). The independent variables were caregiver profiles, and non-personal and supportive services at baseline. Results: Caregiver profiles were significant predictors of service use; those experiencing high strain were more likely to use formal care. The use of low-intensity, less intrusive services at baseline significantly predicted the use of home personal care and admission at follow-up. The use of day care at follow-up was predicted by the baseline use of supportive services. Conclusion: Caregiver profiles are valuable predictors for service use: this knowledge can aid professionals in ensuring optimal access to services, which is important for maintaining independence at home. In addition, the use of supportive and less intrusive, non-personal services in the early stages of dementia is to be advised.",
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Kerpershoek, L, Woods, B, Wolfs, C, Verhey, F, Jelley, H, Bieber, A, Stephan, A, Michelet, M, Selbaek, G, Handels, R, Wimo, A, Hopper, L, Irving, K, Marques, MJ, Gonçalves-Pereira, M, Portolani, E, Zanetti, O & de Vugt, M 2018, 'Do caregiver profiles predict the use of dementia care services? Findings from the Actifcare study', Aging and Mental Health. https://doi.org/10.1080/13607863.2018.1544215

Do caregiver profiles predict the use of dementia care services? Findings from the Actifcare study. / Kerpershoek, Liselot; Woods, Bob; Wolfs, Claire; Verhey, Frans; Jelley, Hannah; Bieber, Anja; Stephan, Astrid; Michelet, Mona; Selbaek, Geir; Handels, Ron; Wimo, Anders; Hopper, Louise; Irving, Kate; Marques, Maria J.; Gonçalves-Pereira, Manuel; Portolani, Elisa; Zanetti, Orazio; de Vugt, Marjolein.

In: Aging and Mental Health, 06.12.2018.

Research output: Contribution to journalArticle

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T1 - Do caregiver profiles predict the use of dementia care services? Findings from the Actifcare study

AU - Kerpershoek, Liselot

AU - Woods, Bob

AU - Wolfs, Claire

AU - Verhey, Frans

AU - Jelley, Hannah

AU - Bieber, Anja

AU - Stephan, Astrid

AU - Michelet, Mona

AU - Selbaek, Geir

AU - Handels, Ron

AU - Wimo, Anders

AU - Hopper, Louise

AU - Irving, Kate

AU - Marques, Maria J.

AU - Gonçalves-Pereira, Manuel

AU - Portolani, Elisa

AU - Zanetti, Orazio

AU - de Vugt, Marjolein

PY - 2018/12/6

Y1 - 2018/12/6

N2 - Objectives: Previously developed dementia caregiver profiles defined by caregiver age and burden, have been associated with caregiver quality of life, depression and perseverance time. The current aim was to investigate whether these caregiver profiles could predict subsequent service use. In addition, non-personal (e.g. meals on wheels) and supportive services (e.g. Alzheimer café) in early dementia were investigated as predictors. Methods: A total of 451 dyads of people with dementia and their informal caregivers from eight European countries were followed for one year. People were included if they did not use formal (personal) care but were expected to do so within 1 year. Logistic regression analyses were used with four clusters of service use as dependent variables (home social care, home personal care, day care and admission). The independent variables were caregiver profiles, and non-personal and supportive services at baseline. Results: Caregiver profiles were significant predictors of service use; those experiencing high strain were more likely to use formal care. The use of low-intensity, less intrusive services at baseline significantly predicted the use of home personal care and admission at follow-up. The use of day care at follow-up was predicted by the baseline use of supportive services. Conclusion: Caregiver profiles are valuable predictors for service use: this knowledge can aid professionals in ensuring optimal access to services, which is important for maintaining independence at home. In addition, the use of supportive and less intrusive, non-personal services in the early stages of dementia is to be advised.

AB - Objectives: Previously developed dementia caregiver profiles defined by caregiver age and burden, have been associated with caregiver quality of life, depression and perseverance time. The current aim was to investigate whether these caregiver profiles could predict subsequent service use. In addition, non-personal (e.g. meals on wheels) and supportive services (e.g. Alzheimer café) in early dementia were investigated as predictors. Methods: A total of 451 dyads of people with dementia and their informal caregivers from eight European countries were followed for one year. People were included if they did not use formal (personal) care but were expected to do so within 1 year. Logistic regression analyses were used with four clusters of service use as dependent variables (home social care, home personal care, day care and admission). The independent variables were caregiver profiles, and non-personal and supportive services at baseline. Results: Caregiver profiles were significant predictors of service use; those experiencing high strain were more likely to use formal care. The use of low-intensity, less intrusive services at baseline significantly predicted the use of home personal care and admission at follow-up. The use of day care at follow-up was predicted by the baseline use of supportive services. Conclusion: Caregiver profiles are valuable predictors for service use: this knowledge can aid professionals in ensuring optimal access to services, which is important for maintaining independence at home. In addition, the use of supportive and less intrusive, non-personal services in the early stages of dementia is to be advised.

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