Ethical and legal challenges of personalized medicine: paradigmatic examples of research, prevention, diagnosis and treatment

Translated title of the contribution: Desafios éticos e legais da medicina personalizada: exemplos paradigmáticos de investigação, prevenção, diagnóstico e tratamento

Research output: Contribution to journalArticlepeer-review

5 Citations (Scopus)
40 Downloads (Pure)

Abstract

This article overviews the important ethical and legal challenges of different steps of the personalized medicine journey such as research, prevention, diagnosis and treatment by discussing paradigmatic examples including biobanks, genetic tests and gene therapy. Scientific progress in the area of genetics, the completion of the Human Genome Project and the ability to sequence genomes for competitive prices have offered the promise of revolutionizing healthcare and raised important challenges to classical paradigms in the biomedical law and ethics fields. Issues such as informed consent, privacy and confidentiality, and discrimination require particular analysis in this context. In the last years the concept of personalized medicine has been a source of considerable hype and hope. Law and ethics should be important allies to limit the former and potentiate the later.

Translated title of the contributionDesafios éticos e legais da medicina personalizada: exemplos paradigmáticos de investigação, prevenção, diagnóstico e tratamento
Original languageMultiple languages
Pages (from-to)164-180
Number of pages17
JournalRevista Portuguesa de Saúde Pública
Volume32
Issue number2
DOIs
Publication statusPublished - 1 Jul 2014

Keywords

  • Biobanks
  • Gene therapy
  • Genetic tests
  • Genetics
  • Genomics
  • Personalized medicine
  • Public health law and ethics

Fingerprint

Dive into the research topics of 'Desafios éticos e legais da medicina personalizada: exemplos paradigmáticos de investigação, prevenção, diagnóstico e tratamento'. Together they form a unique fingerprint.

Cite this