A web-based platform for the therapeutic education of patients with physical disabilities

Yves Philippe Rybarczyk, Pedro Mendes, Pierre Rybarczyk, Didier Vernay

Research output: Chapter in Book/Report/Conference proceedingConference contribution

Abstract

The therapeutic patient education (TPE) aims at helping patients and relatives to understand diseasesand treatments, and collaborate in healthcare by taking an active role in the management of a chronicdisease, in order to improve the quality of life. This model has been largely developed in the Frenchspeaking European countries, which have adopted a series of laws and regulations to ensure thepatient can access and comprehend easily the information related to his/her state of health, with theobjective of transforming him/her into a fundamental care giver that will work in partnership with thehealth professionals. This transition from the classical patient compliance to empowerment is arevolutionary concept in terms of patient education. As in any form of education, individuals areinvolved in a long-term learning process, in which they have to acquire knowledge, competencies anddevelop behavioral skills to deal with their disease and become as autonomous as possible.In practice, this consensual idea is not so easy to implement. A patient with a chronic disease issurrounded by several health professionals who use their own technical language, which impedes theinterdisciplinary exchange of information between specialists and from the care giver to the patient. Inaddition, the current tools in TPE are essentially based on a rigid form template, inspired by the paperformat, which challenges the construction of a customized strategy to evaluate the patient needs.These are not adapted to a self-evaluation by patients because they are difficult to understand by nonspecialists.At last, they usually focus on a determined disease instead of taking into account theglobal state of the individual and therefore disregarding important parameters such as pain or mood.
In order to enhance the TPE, we have developed a web-based application that permits a customizedand strategic evaluation of neuromuscular deficiencies as a whole (http://enterface13.net/am/). Themain challenge of this project is to construct a tool which is accessible for ordinary people but stillmaintains useful information for health professionals. The user interface is mainly composed bypictogram-based questionnaires and dynamic forms to allow an intuitive utilization even for nonspecialists.The originality of the platform is based on a tight collaboration between patient, relativesand professionals. At a socio-educative level, the tool is used to share data and to be a languageinterface to facilitate the communication between health, social and administrative specialists. At amedico-educative level, the multidisciplinary healthcare cooperative network is improved thanks to amulti-users access, a customization of the application using, and different reading and consultinglevels of the data (from an overview to a detailed analysis). On one hand, the goal is to create a realclinical record in order to prevent the repetition of the same questions in various services and tocomplete questionnaires that depend on the medical context. On the other hand, this approachpromotes an active involvement of the patient, by allowing for self-evaluation.
Original languageEnglish
Title of host publicationProceedings of the 6th International Conference of Education, Research and Innovation
Pages7-16
Publication statusPublished - 1 Jan 2013
Event6th International Conference of Education, Research and Innovation -
Duration: 1 Jan 2013 → …

Conference

Conference6th International Conference of Education, Research and Innovation
Period1/01/13 → …

Keywords

  • Web-based application
  • therapeutic patient education

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    Rybarczyk, Y. P., Mendes, P., Rybarczyk, P., & Vernay, D. (2013). A web-based platform for the therapeutic education of patients with physical disabilities. In Proceedings of the 6th International Conference of Education, Research and Innovation (pp. 7-16)